Well
Well, it’s that time again and I’ve been
avoiding it like the plague. We’ve just so enjoyed the past 6 mo nths that I figured the longer I could put it off
the longer we could pretend she was well. We ran out of refills on her meds
well over 3 mo nths ago. My
pharmacist, Jihad, who despite the connotations of his name is one of the
warmest and mo st peaceful men you
will ever meet and has become a very dear friend to me since May was diagnosed
last year. He has faithfully called the doctor to request new refills each of
these last few months, however, I knew it was coming…refill approved, but follow up
appointment is required.
I could tell something was up with her, I’d
noticed it for a few weeks now. She seemed happy enough, but just a little
sluggish. I stared at her as she mo ved
through the house. With her stuff, it’s so hard to say…really only a mo ther can tell, like when a
mo ther knows her infants cry means hungry instead of sleepy
or tummy ache instead of a wet diaper. But so much of that was lost in this
whole thing, that natural knowing of what she needs. The hows and whens and
whats of my mo therhood were stolen
through this process. I had once so fervently believed in my abilities to
nurture her and now I don’t even know what to feed her.
So I made the
phone call, “Yes, Wednesday of next week is fine,” and dug out the lab orders
the doctor had given me at our last appointment. “Have her blood work done in
about six mo nths, okay?” Six mo nths seemed irrelevant at the time, I was so giddy
and starry-eyed by the news she had just given me… “Her labs are perfect, in
fact it seems her liver has completely regenerated itself, her body is
responding miraculously to the medications.”
But now my six mo nths were up.
“Girls, hop in the car, we’ve got to run
some errands.” They grumbled as they always do when I drag them to Vons and
Wal-Mart.
“We’re not
going to the store, girls.” May hopped in the front seat and glanced down at
the all too familiar carbon lap slip resting on the dashboard. She dropped her
head as her eyes welled up.
I’d tricked
her, my little lamb to the slaughter.
“Come on baby,
you’ve done this a million times, it’s no big deal, you’re an old pro at this
now.”
She stared out
the window.
I patted her
leg, “It’ll be fast sweetie, in and out, I’m sure Jason will be there. You love
Jason.”
“Mom, I don’t want to talk about it.”
We rode in
silence the next few blocks to the lab, Summer plugged out with her ipod and
Jazi doodled pictures in the backseat.
Behind the
counter was an overweight Asian woman with an apparent inability to smile. “Is
Jason here?” I asked her.
“No, Jason
hasn’t worked here in two years.”
Why I began
arguing with her I still don’t know. “That’s impossible” I told her. “He was
here the last time we drew her blood, he always draws her blood.”
“Not in
the last two years.” She said leaning over the counter on the palms of her hands.
“It hasn’t been two years, we were
here just six mo nths ago, and you weren’t here and before that Jason was here every week.”
“Well, not
anytime in the last two years,” she said shaking her head and rolling her eyes.
May tugged
on my sleeve, “Mom, Jason wasn’t here the last time.”
I took a
deep, anxious breath and turned back to the woman. “Well then just give me the
best person back there, the mo st
gentle you’ve got….” And then I added snippily, under my breath, “but it hasn’t
been two years!”
She
scribbled something down on a yellow post it and stuck it to May’s chart. Then she
told us to take a seat, that they’d call us back when it was our turn.
A few
minutes later some new guy opened the door and called her name. “Muh-hall-uh”.
“It’s
Mahala,” I told him as May and I followed him through the door.
You could
tell right away he was green. It may have even been his first day. I sat down
in the seat and May climbed up into my lap and plopped her left arm palm side
up on the table. “I think this vein is better today,” she said, “but I feel
kinda dehydrated so it might be hard to find.”
He was
fidgety, skittish even. He pressed his pointer finger in the crease of her arm
and then asked to see her other arm.
I let
out a deep sigh. I could tell May was starting to fret. I can always tell
because she gets kinda spacey and whimpers a little.
“Um…I...
think it might be better if she sat in the chair by herself, she’s a little too
high up being in your lap,” he stuttered as he spoke.
But she always sits in my lap when she has her
blood drawn, since the first time, when she was only eight. I hold her tightly
in my arms and pray through the whole thing. Jason knows this; it’s never a
problem for Jason.
“Actually…Mom,
maybe you should just go,” May said as she looked up at me with those deep
green eyes…those eyes… they would make even the hardest of hearts melt into a
puddle on the floor.
“Would that help, sweetie?”
“Yeah,
Mom, I’ll be alright.”
“Okay,
what ever you need, Love.” It all happened so fast. Before I knew it, I was
back in the waiting room, standing like a guard, just outside the door.
“Mom,
where’s May?” Summer asked.
“She’s still in there, baby.”
“Mom
is she okay?”
“Yes,
honey, she’s fine.”
“Mom
are you okay?”
“Uh,
huh…yeah honey…”
I
stood there on the outside. Time stopped. My heart raced, my throat closed. I listened to her soft whimpers through the
closed door.
“Mommy, mo mmy…come sit down. Jazi tugged at my hand and led
me to my seat. I sat down and Jazi wiggled up into my lap and brushed her tiny
hand across my cheek. “Oh…its okay Mommy, “she said, “May’s gonna be okay.”
“Mom, you’ve gotta hear this song.” I heard Summer say it but I just
stared at the closed door. “Mom, here listen to this…”
She tried to hand me her earphones but I waved them away. “Not right now
sweetie, I’ll hear it later.”
“No Mom,
listen now…it will make you feel better.”
I looked
down at my other two girls, the healthy ones, the ones who seem to get the
least of me…and I missed them terribly. I wrapped my arms around them and
squeezed them close to my chest. “Okay Sweetie, give me the earphones.”
The music
filled my head and my heart swelled.
“I can change the world…with my own two hands
make it a better place, with my own two hands
make it a kinder place, with my own two hands
With my own, with my own… two hands
I can make peace on earth, with my own two hands
I can clean up the earth, with my own two hands
I can reach out to you, with my own two hands
With my own, with my own… two hands
With my own, with my own… two hands
I’m gonna make it a brighter place, with my own two hands
I’m gonna make it a safer place, with my own two hands
I’m gonna help the human race, with my own two hands
With my own… with my own… two hands
With my own… with my own… two
hands
I can hold you, in my own two hands
And I can comfort you, with my
own two hands
But you got to use… use your own, two hands, use your own, use your own…two
hands
With our own two hands… with our own… two hands…with our own two hands
With my own…with my own…two hands”
Tears ran
down my face as I held my babies and swayed to the music and I realized that
behind that door, and in my lap, were not only two, but six little hands. Six
hands with the ability to change the world, make it a better place, a kinder
place, a brighter place, a mo re
peaceful place; that they would be hands that would reach out and hold and
bring comfort that would help the human race. I also realized that mo re and mo re,
as they were able, I would be on the outside of it all. That their path, their
story, with all their own sufferings, all their own joys, was between them and
their maker, hardly any of my business at all. And I understood what she was
doing in there; she needed me out of the way, so she could draw close to Him.
Through all of this horror…she found Him…I know this. I may have lost my
ability to know what to feed her, but she gained the understanding that He
knows, and that He has, what she is hungry for.
When she
finally came out of the room, both her arms were bandaged and bruised. I rushed
to her side.
“Did he get
it, are you alright?”
“Yeah, Mom…I’m fine, can we go now?”
As we
walked towards the elevator I put my arm around May’s shoulders and Summer and
Jaz huddled in close. “Well, that guy was totally out of it, huh? I mean he
must have been new.”
And her
reply was so typical May. “Yeah, I felt so terrible for him. He was so nervous,
he couldn’t find my vein, he even had to get his boss to help him…and I think
you made him extra nervous, Mom” she said with a chuckle.
She was
so okay…she was mo re than okay. She
was extraordinary. And I’d bet good mo ney
that she changed that new guy’s day, with her kindness…and with her own two
hands.
When May
was 3 days old I lifted her to the heavens, high above my head, I raised her
tiny body and with trembling hands sang,
“Come thou fount of every blessing, tune my heart to sing thy grace.
Streams of mercy never ceasing, call for songs of loudest praise.
Teach me some melodious sonnet, sung by flaming tongues above.
Praise the mo unt! I’m fixed
upon it, mo unt of thy redeeming
love.
O to grace how deep a debtor, daily I’m constrained to be.
Let thy goodness, like a fetter bind my wandering heart to thee.
Prone to wander, Lord I feel it, prone to leave the God I love;
Here’s my heart, O take and seal it. Seal it for thy courts above.”
Here’s my
heart, Lord, seal her for your courts above. He had given her to me and I knew
I had to give her back. That she was only on loan; that each day that I nursed
her, bathed her, rocked her to sleep was borrowed time. I’ve known it all along.
I knew the first time I held her, the first time I held each of my babies, that
all that magic swaddled up in my arms was so much bigger than me. I knew that
there were many things I’d be instinctually good at and I trusted the women
around me to help me muddle through the rest. I knew Jon would shine. But I
also knew that there were some things we were never meant to do and that her
deepest longings could be met by Christ alone. But that doesn’t necessarily make
it any easier, the three year old in me still wants to grab her tight and
scream, “Mine!” But that’s not what is best for her, and a good mama does what
is best for her baby.
So when Wednesday mo rning
came around I knew what I had to do. I hunkered myself down on the landing of
our stairwell, where the mo rning sun
streams through the window, and I raised my hands to the heavens and gave her
up…again. I let her go, again. I gave her to the One who had given her to me,
the One who created her, adores her and knows… and has…every thing she needs.
I had no idea what the day would bring. I had
prepared for the labs to show the worst, played out all the scenarios. I had allowed
my mind to go there…and see if I would still say God was good, all the time.
Oh, how I hoped I would, how I hoped I would have the courage to be faithful.
Well, I guess
for now, I won’t know the answer to that…because by His great mercy and
grace…she is still well. Her sluggishness attributed to normal adolescent growth,
three quarters of an inch taller, actually. The doctor says she’ll probably be
taller than me soon. Her liver is still perfect, her thyroid is perfect and the
medications are daily stabilizing her blood sugar. He’s on the case, He hears
my cries. Not a night goes by where we don’t still lay our hands on that sweet
baby and pray for each cell, each part of her. And we know there is no
guarantee that her health will always be well…however through all of this I
hear her singing, I lean my head on the hallway, just outside her room and I
can hear her. I think she knows I’m there; maybe it’s her way of telling me
she’s okay…and she sings,
Well, I could sing unending songs
Of how you saved my soul
And I could dance a thousand miles
Because of your great love
My heart is bursting Lord
To tell of all you’ve done
Of how you’ve changed my life
And wiped away the past
I want to shout it out
From every rooftop sing
For Now I know
That God is for me, not against me
Well, I could sing unending songs
Of how you saved my soul
And I could dance a thousand miles
Because of your great love
I want to shout it out
From every rooftop sing
For now I know
That God is for me, not against me
Everybody’s singing now,
Cause we’re so happy
Everybody’s dancing now
Cause we’re so happy
If only I could see your face,
See you smiling over us
Unseen angels celebrate
The joy that’s in this place!
The Joy that’s in this place!